Patient Involvement in Research Day 2018

To mark World IBD Day, we held a Patient Involvement in Research Day for patients with Crohn's and Colitis on Friday 18 May 2018 in London.

Event organisers: Kapil Sahnan, St Mark's Hospital and Mark Samaan, Guy's and St Thomas' Hospital


Find out more about the research featured on the day here


Outcomes

The pair worked with a team of Patient and Public Involvement (PPI) experts including: Ailsa Hart (UK PPI lead for Gastroenterology), Christine Norton (Professor of Nursing), Nicola Fearnhead (President in waiting of the ACPGBI), Phil Tozer (an academic colorectal surgeon) and two fantastic expert patients (Azmina Verjee and Sue Blackwell). The conference was attended by 80 patients and 30 researchers from around the country.

Research studies should incorporate the views of patients to ensure they are patient-centred and acceptable to patients. The conference aimed to provide basic information on IBD and to update patients on existing research. Patients were then able to shape current and future clinical trials. This type of conference was valuable to IBD patients and researchers alike to improve trial design and to create a network to keep patients informed of on-going studies and ways to get involved in future research. The event was supported by the ACPGBI, the BSG, the BDRF, Crohn’s & Colitis UK, and NIHR Imperial BRC’s Patient Experience Research Centre (PERC).

Read more about the Patient Involvement in Research Day, from the Imperial College London blog.


Click below to read patient feedback summaries on each featured research area:

ASTIClite

CAF-QoL

CRUISE

Dietary Algorithm

Dietary Sulphur

Fertility

IBD Boost

IBD Fatigue

PREdiCCt

SPARE

STOP COLITIS


To find out more or to register for future Patient Involvement in Research Days please email research@crohnsandcolitis.org.uk