This research is looking at the relationship between food and IBD.
We do not know how many people with IBD are affected by problems with food-related quality of life, nor what the most common problems are, and why and when they occur...
What is this research looking at?
Food plays an important part in people’s lives, it can often be a social occasion providing pleasure and enjoyment. However, people with IBD may find that their relationship with food changes, especially if food can trigger their symptoms. There can be all sorts of social and psychological impacts if you have to be careful about what you eat, or worry that eating may make your symptoms worse.
Previous research by this group, funded by Crohn’s and Colitis UK, looked at the effect that IBD has on ‘food-related quality of life’. They found that many people felt isolated, stressed and anxious when it came to food. The group went on to develop a questionnaire to measure the impact of IBD on people’s relationships with food. This was called the food-related quality of life questionnaire ‘FR-QoL-29’. It was shown to be accurate and reliable, so the researchers now want to expand the study to see how many people with IBD are affected by problems with food related quality of life. They want to carry out the questionnaire out on 1525 more people with IBD from five different NHS trusts in order to find out what the most common problems are, and also how people overcome them.
The researchers then wish to use the results from the questionnaire to develop tools to help IBD patients. They will do this with the help of people with IBD who have successfully overcome problems they have with food-related quality of life. Joint patient and healthcare professional feedback meetings will be held, and ‘patient stories’ will be filmed or recorded so that people with IBD and healthcare professionals can understand the issues, and also how best to resolve them. The group will then help develop tools to address food related quality of life in people with IBD, and test them on volunteers. People with IBD will be included in all stages of the project, and will be directly involved in developing the tools.
What do researchers think this could this mean for people with IBD?
This study will help people to understand the quality of life issues faced by people with IBD when it comes to food and eating. The researchers want to develop tools for people with IBD to help solve their problems, and improve their food-related quality of life.
Who is leading the research: Professor Kevin Whelan, Kings College London
Our Funding: £115,000
Duration: 24 months
Official title of the application: Measuring the burden of food-related quality of life in Inflammatory Bowel Disease: developing and testing interventions that are relevant to, and designed by, people with IBD.