This study aims to find a way to reduce fatigue in IBD patients.
Our ultimate aim is to find a simple intervention to empower patients to deal with the difficult task of living with IBD and the fatigue this can bring.
What is this research looking at?
Many people with Inflammatory Bowel Disease (IBD) suffer with fatigue. Some times this can be caused by active disease or anaemia, but some people are still fatigued even during remission - 4 or 5 out of every 10 patients with IBD who are in remission report fatigue. This can have far-reaching implications on everyday life.
The Crohn’s and Colitis UK study funded by the Big Lottery Fund looked at the effect of fatigue in people with IBD, and led to the development of a ‘fatigue score’ which is a simple questionnaire designed to quantify the severity of fatigue. The aim of this new study is to continue looking at fatigue, and assess the effect of a structured support and educational programme on the levels of fatigue in patients with inactive IBD who report moderate or severe levels of fatigue.
People whose IBD is in remission will be invited to take part in the study. They will be asked to complete the fatigue and quality of life questionnaires in addition to having the standard assessment of symptoms, blood tests and stool specimens.
Activity diaries will then be completed over the following four weeks. After this time half of the group will undergo the support and educational programme and change their behaviour, while the other group will be the ‘control’ group carrying on as usual.
At the end of the study, all the people involved will again complete the fatigue and quality of life questionnaires and have their disease activity assessed by symptom scores, blood and stool tests. The results will be analysed to see if there is any improvement in fatigue in the group undergoing the programme of support and behavior change when compared to the control group.
This is only a small pilot study, but if it shows that the support and educational programme helps with fatigue, then a larger study will be performed to try and confirm the initial findings.
What do researchers think this could this mean for people with IBD?
The researchers hope that this study will find a simple change or intervention that will help people with IBD to deal with the difficult task of living with IBD and the fatigue that this can bring.
Who is leading the research: Ms Lisa Warren, Leeds Teaching Hospital, NHS Trust
Our Funding: £8,490
Duration: 10 months
Official title of the application: The efficacy of a structured psychoeducational Inflammatory Bowel Disease group on the control of fatigue in an adult outpatient setting for patients with objectively quiescent disease