IBD Nurse specialist.

New resources for Nurses and Healthcare Professionals

Whether you are already an Inflammatory Bowel Disease Nurse Specialist or thinking about becoming one, we have the resources, tools, support and encouragement for you. 

With clear advice and information – compiled and edited with specialist nurses – you can explore becoming an IBD Nurse Specialistbuilding an IBD team and use a national IBD nurse map, and nurses' hub to get connected with other professionals.

At least 300,000 people in the UK live with Crohn’s Disease or Ulcerative Colitis - and the numbers affected are rising. Often diagnosed younger in age, these conditions are lifelong, relapsing and remitting and cost the NHS over £900 million per year. Lifetime medical costs associated with IBD care are comparable to diabetes or cancer.

The availability of IBD nurse specialists across the UK is vital for people living with Crohn’s or Colitis to be able to access responsive health services and improved clinical outcome. They play a fundamental role in delivering high quality patient care and experience, lead patient centred service redesign, improve the quality of care and represent excellent value for money. I think this new resource will benefit so many healthcare professionals and help to improve the quality of care for all of those with IBD.


Isobel Mason,
Service Development IBD Nurses, Crohn's & Colitis UK

Although the number of IBD Nurse Specialists across the UK is increasing (only 2% of IBD Nursing teams meet the minimum number of nurses recommended in national quality standards and over 60% of IBD Nurse Specialists report a higher caseload than recommended levels), services are often suspended in the nurse’s absence, nurses are contributing significant unpaid overtime to meet demand, and patients are not receiving the high quality service that IBD Nurses can deliver. 

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Helpline service

Helpline
Service

We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.

Our helpline team can help by:

  • Providing information about Crohn’s and Colitis.

  • Listening and talking through your situation.

  • Helping you to find support from others in the Crohn’s and Colitis community.

  • Signposting you to specialist organisations.

Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.

Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).

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If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.

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