Hundreds of People Take Part in Research Involvement Event

19 October 2020

Last Saturday, the 17th October, 299 people joined our live Zoom Webinar where some of the latest Crohn’s and Colitis research was presented and discussed openly.

What happened on the day?

The presentations varied from using the smell of poo to diagnose Crohn’s and Colitis in children to understanding steroid side effects! There was polling as well as a lively question and answer session at the end of each talk, with researchers addressing people’s queries and suggestions about their studies live.

During the comfort breaks, attendees were directed to a series of interactive ‘virtual posters’ on our website, where research studies and patient organisations presented their results or research plans and asked for feedback.

We were so impressed by the number and quality of the questions asked by the participants on the call! You really proved that people with Crohn's and Colitis are the experts as a result of your experiences with the conditions. Thank you all so much for taking part!

Huge thanks also go to the fantastic researchers who really embraced the day - we have every confidence that including the patient voice will prove invaluable to their studies.

Dr Jane Fraser,
Research Programme Officer, Crohn's & Colitis UK

How can I get involved now?

To take part now, all you need to do is click the links below to re-watch the live talks and view the virtual poster sessions. You’ll find short polls on each of these pages that researchers need your input on.

Your responses help researchers make sure the voices of people with Crohn’s and Colitis are at the centre of their research.

These polls will stay open until Tuesday 17th November 2020. How many can you take part in before the deadline?

Re-watch Live Talks: 

IBD-RESPONSE: Defining microbial predictors of responsiveness to biological therapies in Crohn's disease and ulcerative colitis - Dr Chris Lamb
Adapting Cognitive Behavioural Therapy for Insomnia for People with IBDDr Alex Scott
Can the smell of stool be used to diagnose IBD in children?Dr Chris Probert
Profiling chronic pain in people with IBDDr Kazuya Takahashi
Measuring the response to anti-TNF therapy in arthritis and IBDDr Tom Thomas
Views and preferences about steroid regimes and their side effectsDr Nishani Jayasooriya

Check Out the Virtual Poster Session:

Using acceptance and commitment group therapy to manage pain
Improving treatment adherence in young people with IBD
The routine diets of people with Crohn's disease
A Self-compassion Intervention for Parents of Children with IBD
Electrical VAgal StimulatION in Ulcerative Colitis- a study of nerve stimulation in ulcerative colitis (EVASION-UC)
Targeting ‘Leaky Gut’ with combined dietary zinc and plant derived Aryl Hydrocarbon Receptor agonists
Understanding Gut Danger Signals in IBD
Being Me with IBD
The IBD Registry
The IBD BioResource
Gut Reaction
Guts UK
The Ileostomy & Internal Pouch Association (IA)
Bowel Research UK

Do you have any feedback for us?

If you either attended the event live or have checked out the content retrospectively, we’d really appreciate your feedback to help us shape future research involvement events. This survey should take less than 5 minutes to fill out.

Thank you!

We’d like to say a big thank you to all the people who joined us on the Webinar and have checked out the virtual poster session! Your input will help shape the next generation of Crohn’s and Colitis research to make sure it works for the people who need it most.

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