Chaired by Pauline McNeill MSP and supported by Crohn’s & Colitis UK, it includes Members of the Scottish Parliament (MSPs), healthcare professionals, policymakers and people affected by Crohn’s and Colitis.
The group works to raise awareness and maintain a high profile for Crohn’s and Colitis as healthcare priorities. Regular meetings provide focus and momentum for service improvement work with the support of the Scottish Government and the Scottish IBD community.
Knowledge and insight
Personal stories are shared at every CPG meeting and inform and help to shape the work of the CPG.
The group met during Crohn’s and Colitis Awareness week to discuss IBD care for young people and actions that can be taken by the CPG to improve this. Issues highlighted included transition from paediatric to adult services and the lack of psychological support for young people in adult services. The group heard from a mother of two teenage boys who have had strikingly different experiences in paediatric and adult IBD services in Scotland.
Keeping IBD on the agenda
Acknowledging that there is still much work to do to ensure everyone with Crohn’s and Colitis in Scotland receives high-quality care, Pauline said:
Pauline has tabled a Motion in the Scottish Parliament for Crohn’s and Colitis Awareness Week and written to MSPs to ask for their support.