Whether you work in primary or secondary care, you can make a real difference to the lives of people affected by Crohn's and Colitis by trying the In My Shoes app and using our resources to promote the app to colleagues and patients.
In My Shoes: 24 Hours with Crohn’s or Colitis is a free, immersive app which enables anyone in a patient's support network to step into the life of someone living with these conditions for one day. From depleting energy levels to managing pain, from rushing to the toilet to juggling work and a social life, the app helps the user experience first-hand how these conditions can affect every part of the body, and every aspect of life.
The app has shown that it increases user understanding of and empathy for patients living with Crohn's and Colitis. And using the app as a tool, IBD teams can encourage self-management, by empowering those with Crohn’s and Colitis to start important conversations with their support network.
To help you get the most out of the app we're created a range of resources for healthcare professionals:
You can scroll below to view the healthcare professional guide in full below or download the guide.
A Guide for Healthcare Professionals
In My Shoes: 24 Hours with Crohn’s or Colitis is a free, immersive app which enables people to ‘step into the shoes’ of someone living with Crohn’s or Colitis. The app experience is designed to be completed by the friends, family and colleagues of people living with Crohn’s and Colitis, rather than by the people living with the conditions themselves. It was created to help people living with these conditions build up a support network who are understanding, empathetic and keen to have conversations about what it is like to live with Crohn’s or Colitis.
In My Shoes has already made a difference to the lives of people living with Crohn’s or Colitis, but we believe, with your help, the benefits could be felt by many more.
This guide has been developed to give you more information about In My Shoes. We have two asks:
1) Many healthcare professionals involved in the care of people with Crohn’s or Colitis have tried the app themselves and as you will read later on, are keen to recommend it! Will you and your IBD service colleagues do the app experience together?
2) Will you recommend the app to your patients?
The Insight: Many people with Crohn’s or Colitis feel that their condition is poorly understood by the wider public – and even by their own friends and families. 76% of people with Crohn’s and Colitis don’t think the general public understand their needs.1
People also face discrimination in the workplace and 1 in 2 people have faced discrimination for trying to use an accessible toilet.2
The Big Idea: In 2019, Takeda and Crohn’s & Colitis UK worked together to create In My Shoes: 24 Hours with Crohn’s or Colitis. The app allows anyone to step into the life of someone living with Crohn’s or Colitis for a day, experiencing a series of tasks and choices which prompt the user to think about how the conditions can impact daily life.
From depleting energy levels to managing pain, from rushing to the toilet to juggling work and a social life, the app helps the user to experience firsthand how these conditions can affect every part of the body, and every aspect of life.
The Impact of the coronavirus pandemic
In Crohn’s & Colitis UK’s Life in Lockdown survey of 7,666 supporters, we found that nearly half (46%) of people living with Crohn’s or Colitis felt isolated, with 48% reporting that their mental health had been negatively affected.3
Amid the uncertainty of the coronavirus pandemic, it becomes increasingly important that people living with Crohn’s or Colitis feel connected, understood, and empowered to have open conversations with people in their lives. The In My Shoes app experience helps to initiate these conversations.
Over 30,000 downloads. In the week after launch, the app was the second most downloaded Health & Fitness app on Google Play.
Survey data from people who completed the app experience show an increase in people being able to explain how Crohn’s and Colitis can affect people day to day and increases in understanding and empathy.4
For more video testimonials of In My Shoes download our guide for healthcare professionals, scroll down to the end of this page, or visit our Youtube channel.
At the time of writing, the coronavirus pandemic is still affecting how IBD Services are able to deliver care to people with Crohn’s or Colitis. People living with Crohn’s or Colitis can find it very hard to articulate the burden that their condition places on them, and this may have worsened due to shielding and heightened isolation from national lockdowns.
Can you:
There is no one ‘right time’ or ‘best time’ to talk to patients about In My Shoes, as everyone’s individual circumstances will be different. These might be some useful cues/touchpoints to look for:
We've developed a patient guide to In My Shoes, and this is available to view and download here.
The app has already made a difference to the lives of people living with Crohn’s or Colitis, but with your help, the benefits could be felt by many more. This app makes a difference to patients by giving them a tool they can use with friends and family to build understanding, empathy and support.
We have developed a number of resources designed to help you spread the word about the app and the valuable work your IBD Service is already doing to share it with patients.
Sharing your own stories
If you recommend the app to a patient and they benefit as a result, consider sharing their story (with their permission of course!). Speak with your communications team about ways you can work together to do this, and to talk about the app in general. Some ideas include:
Social media
You can use your range of resources to help you make the most of In My Shoes:
We know it can be difficult to live with, or support someone living with these conditions. But you’re not alone. We provide up-to-date, evidence-based information and can support you to live well with Crohn’s or Colitis.
Our helpline team can help by:
Providing information about Crohn’s and Colitis.
Listening and talking through your situation.
Helping you to find support from others in the Crohn’s and Colitis community.
Signposting you to specialist organisations.
Please be aware we’re not medically or legally trained. We cannot provide detailed financial or benefits advice or specialist emotional support.
Please contact us via telephone, email or LiveChat - 9am to 5pm, Monday to Friday (except English bank holidays).
If you need specific medical advice about your condition, your GP or IBD team will be best placed to help.
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