Patient involvement

Patient involvement

Crohn's and Colitis UK believes that no Inflammatory Bowel Disease (IBD) related initiative, development or service will be as good as it could be without the input of people affected by these conditions at each stage in the cycle of planning and development, implementation and delivery, monitoring and review.

Those living with IBD have a personal experience and understanding of the impact this has on their and their families' lives and through receiving health and other public services, they can become 'Experts by Experience'. This wealth of experience plays a vital role in informing and shaping the work of the Charity and improving the way services are delivered for others.

Crohn's and Colitis UK work to ensure that the voice of those living with IBD is valued and heard. We support individuals to become involved with the Charity and with initiatives that can make a real difference to the lives of others with IBD. In addition to this, we support and encourage individuals to get involved in service improvement more broadly by participating in opportunities that are not IBD specific but enable representation from the IBD patient community.

Susan Maniquiz

Being a part of the Highland project has been great.  I've learnt so much and knowing that I am helping change the shape of healthcare for IBD patients in the Highlands and in Scotland as a whole is hugely satisfying.

Susan Maniquiz
Scottish Service Development Group Patient Member 

Get involved!

The opportunities listed below are independent of Crohn's and Colitis UK and are not necessarily IBD specific but meet our best practice requirements and enable you to use your experience as a patient to improve care and services for others. If you have any queries about any of the opportunities listed below then please contact the organiser.

  • Scotland: Citizenship Focus Group - Researchers from the University of Strathclyde are looking at what the concept of citizenship means to people who have experienced 'life disruptions' - in this case long term health conditions. They want to understand more about the things that are important to people in their day to day lives, what makes them feel included and what the barriers are. Participants are invited to come along to a focus group discussion with others who have experienced similar life disruptions, which will last approximately one hour. Refreshments and lunch will be provided, and travel expenses can be paid for. To find out more, please contact Gillian MacIntyre on 0141 444 8647 or email her on
  • NHS Essay Competition The King's Fund are holding a competition to stimulate new thinking and writing about the future of the NHS. They would like to invite you to write your own essay exploring a future scenario for the NHS, considering the potential impact on the health system and wider society. An expert panel of judges will select the winning essay, which will be published on The NHS if... website. The competition is open to anyone with an interest in the future of health and care in England including patients and carers. Find out more
  • Lay/Patient representative assessor - The Royal College of Physicians (RCP) sets best practice standards for NHS services in endoscopy, primary immunodeficiency and allergy services. It then assesses services to ensure they meet the standards and accredits them when they do. The RCP is recruiting lay assessors to represent the needs of patients and service users in accreditation assessments and is looking for patients or members of the public who bring their own experience, fresh insight and an independent perspective. They will be required to ask powerful questions and contribute to the accreditation process, offering fresh views and a reality check rather than to formally represent a group of patients or the public.

No formal qualifications are required, simply a commitment to support the continued development of healthcare through the accreditation process, an objective approach, a genuine interest in participation and an ability to constructively challenge the views and assumptions of professionals. If you would like to be considered for recruitment and training to become a lay assessor, please email: to request an application pack.