Improvements to diagnosis and information provision

What is the problem with diagnosis?

People are waiting too long for a diagnosis of Crohn’s or Colitis.  Living with debilitating symptoms without treatment has a big impact on their lives.  The conditions are not well-understood, so someone with symptoms might not realise they need to seek help.  The symptoms overlap with other conditions, making it hard for GPs to spot possible Crohn’s or Colitis.  And the systems are not always in place to ensure people are seen quickly by a specialist. Once given a diagnosis, not everyone is given the information they need about the condition or the patient organisations that can offer support.

Partnership working to improve diagnosis

We worked with the Royal College of General Practitioners (RCGP) as part of the IBD Spotlight Project to develop an IBD Toolkit for GPs and other community healthcare professionals. As part of this, we’ve co-designed pathways to improve the journey to diagnosis and promoted these widely, including through the Academic Health Science Networks.

Information and support

We’ve designed information especially for people who are newly diagnosed and offer support through our Helpline.  We want information and support to be easily available to everyone when they need it the most.  We’ll continue to raise awareness and work to improve understanding of Crohn’s and Colitis through our health service improvement projects, policy and campaign work – for example, through our It Takes Guts and Not Every Disability is Visible campaigns.

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