Why is quick access to specialists important?
Crohn’s and Colitis are fluctuating conditions, which means they need to be monitored closely, and specialist advice and treatment should be available quickly when needed. Understanding when you are having a flare-up of your condition – when symptoms get worse - and what you can do to manage this is very important. We have co-designed a flare card as part of a project in Scotland and flare pathways to streamline access from GPs to specialists.
IBD advice lines
Most specialist hospital services run an IBD advice line for queries and concerns, which is usually supported by an IBD nurse specialist. We run IBD advice line training to help IBD nurse specialists to run these effectively.
Access to treatments
Medicines are a vital part of managing and treating the symptoms of Crohn’s and Colitis. Being able to access the widest and most innovative range of evidence-based drug treatments and new technologies is therefore fundamental.
We work with the Association of Coloproctology of Great Britain and Ireland (ACPGBI) as part of IBD UK to ensure that surgery for Crohn’s and Colitis is prioritised appropriately alongside other conditions based on clinical need.
We are also members of the advisory group for the National Confidential Enquiry into Patient Outcome and Death (NCEPOD) study into surgery for Crohn’s Disease.